Tuesday, July 19, 2011

Newbie Advice

Someone asked me what I would tell someone newly diagnosed with Fibromyalgia. Here is what I came up with:

'You know how you are feeling right now? It gets better. At first being sick with Fibromyalgia is creepy and scarey. At first, before I knew what I had, I felt out of control. But it got better. I got better at managing the pain and the fibro fog.

I got better at hiding it when I felt really bad and had to go to work. I still hide the pain alot. I figured out other ways to get things done. You will too. I know you can do this.'

I hope and pray you take this to heart too!

Wednesday, July 13, 2011

The theory that Fibromyalgia is a retrovirus has sparked a lot of discussion among myself and my friends who have it. It would be nice to have a medical test to tell us and the world we have it. Even though it is generally accepted that Fibromyalgia is real, I still get those looks.

Better yet it would be nice to have a test for our children. I routinely try to get my children to eat and do the things that I do now so the Fibromyalgia will not be triggered in them. It seems like I have had this all my life but definitely after I had to evacuate for a hurricane.

Many of my friends tell me of trauma in their life that seemed to trigger the Fibromyalgia to a disabling extent. Many of them tell me they have had some of the symptoms and problems since childhood too.

Even if Fibromyalgia is a virus or even if it is not, we still need to do those things that work for us. Journaling what we eat or what stresses us helps us find the things that make it worse. Learning to relax and teaching our children and friends what we learn helps.

I firmly believe that I got Fibromyalgia for a reason. It is a reason I do not know or understand, but I believe everything happens for a reason.

Monday, July 11, 2011

Remember What Helps

One of the problems with Fibromyalgia is remembering to do the things that help. When you are in a flare it is harder to remember anything. The fibrofog is a killer. When you are feeling good you are busy trying to catch up.