Strange Pains

Strange Pains

The strange pains associated with fibromyalgia always surprise me. My doctor told me the pain in my feet was from neuropathy from the fibromyalgia. Then the itchy feelings in the joints in my hands was from the fibromyalgia.  

The breast pain was from the same thing.  Now the pain in my chest is from issues in the cartlidge from the fibromyalgia. Oh yes and the pain in my eyes that has grown over the years is from...you guessed it, fibromyalgia.  Apparently if it hurts it is fibromyalgia.

I check with other people who have fibromyalgia and they have these pains too. 

Till next time, 

Mylinda

My Yule Time Prayer

My Yule Time Prayer

Holidays, work, family - all of these seem to be working in concert to keep me stressed and in pain. It is multiplied when all three areas of my life are out of sync. 

Then if course hurting makes me more stressed. I know holidays are supposed to be for family but I just wish for peace during this holiday. 

Best Neighbor Sign

Best Neighbor Sign

In the town I work in they have these yard signs that say 'best neighbor'.  I am always amused when I see them.  I suppose you get the award for how clean and neat your yard and house is.  The yards are always lovely. They are neatly trimmed with little to no tree branches or materials. The bushes are well cut and clean. Each blade of grass is the proper length.

The house bricks are clean or in the rare chance it is a wooden or vinyl house it doesn't have mildew and is well painted. There isn't old cars or chairs or anything visible to break up the landscape either.

In the past I guess 3 or 4 years since I started using a wheelchair my ideas about things have changed.  At time I roll up and down sidewalks in my powerchair. I like going places by myself if I can. Like I said my view has changed. I am surprised at the houses and businesses that have lovely well taken care of houses/buildings with horrible sidewalks. I realize sidewalks may not technically be part of their yard but really?

The grass growing or that they just blew onto the sidewalk is theirs. The branches form their bushes or trees are theirs too. I don't know how many times I have been scratched up by branches. The bushes around the house are well sculpted though.

I think whoever is giving out these awards should add a category about the sidewalks. That is who you can really tell which household has good neighbors or not.

While they are at it a question about whether the household's vehicle is parked over the side walk would be informative too.  Many homes have vehicles parked in the driveway but over the sidewalk blocking wheelchairs and pedestrians. Maybe you have to go in the street to get by or turn around and go back far enough to get to the street. 

How neighborly is that?  Is there a law about that?

Till next time.

Mylinda

Long Time

Wow, it has been a long time since I needed to write about Fibromyalgia and myself. It has been since the middle of 2017.  It isn't that I don't have to deal with it everyday though. 

I guess I have concentrated more on social media than here. I still read blogs but I am not sure most other people do. Some of my favorite blogs aren't active or are on some kind of recycle program that shows old posts.

Anyway I feel the need to write again. I think most of my observations are about both of my wheelchairs and life using them. We will see where it goes though.

I suspect like most of my writing what I write takes on a life and direction of its own.  I don't know if I have any readers any more.  So if you are reading this drop me a comment about what you are doing now.

Till next time.
Mylinda

Wheelchair Adventures

I haven't posted in a while.  I don't really even know if anyone reads these.  I did finally get my power wheelchair.  It took a solid year.  I have learned so much during that year and am still learning since I got it.

I suppose I thought things would be so much better when I got the power chair.  And it is, I can go places I have not been in years.  I can do things that it had become impossible for me to do.  Unfortunately there is a whole set of challenges I have bumped into since getting the chair and am still trying to figure out.

Most of those challenges have to do with the life.  For instance, I had been told I might have to pay a little more for car insurance.  Well because I have an older model car and because the lift is worth as much as my car my car insurance doubled!!  That was the first of many surprises.

I thought about starting another blog with the name of this post.  Then I though of all the things including the wheelchair I wanted to talk about.  So I am going to stick with this one.  Whether anyone reads it or not. :-)

I Ain't Right Story

I know I never blog about my experience with fibromyalgia often enough.  I post on Facebook more often but not enough their either.  I always believe I will and try to do better but life gets in the way.  And pain.  Pain gets in the way.

Anyway, here is my latest story.  The setup is a little religious but the story is not really.  

I like to watch a religious channel on Saturday evenings.   They have gospel and Christian music.  Afterwards they have an hour where there is someone featured.  Usually a single musician performs but sometimes a comedian.  

There is one in particular that talks about his life and how crazy it is every day.  Then he will say "I ain't right.  And God loves me anyway."  So here is my "I ain't right story".  

I have been having a particularly rough week pain-wise.  Just like everyone else with fibromyalgia I hurt all the time but there are times it is worse.  I still work so it is a struggle every day to get up and get going.  This day was particularly rough.

I usually take my medicine and wait for about 5 minutes for the pain pills to kick in so I can get dressed.  This particular morning I kept waiting and waiting.  I finally had to text my boss and tell her I was going to be late.  

My dog was whining at me.  I was trying to figure out how to get my dog her medicine.  Sometimes the simplest tasks seem so complicated.  At that point I realized I still had my pain medication and my blood pressure medication in my hand.  

I had been sitting there for over thirty minutes waiting for my medicine to kick in.  I ain't right.  FibroFog is a wonderful thing - NOT.  Fibromyalgia does things to my mind and my body.  

I hope I made you laugh a little.  Humor is a good thing.  It is healing.  What funny stories do you have?

The struggles of fibromyalgia.  I have been able to creatively structure my life to get necessary things done.  I have been able to structure my work to get certain parts done.  That has been going on for a long time.  It feels like all of a sudden I could not do my job.

I mean I know I have been gradually doing less and less.  Up until June 2014 of last year I could pull it together and do whatever I needed to do.  It was a shock in March 2015 when I realized that was over.  I could not do a certain things that I had to do and I could not hide it.

I started hiring someone to help me occasionally and renting a manual chair.  I still do the vast majority of my job.  I love helping families.  I just need to and want to help them in a larger of variety of ways.  That was when I decided one of the things that would help was to get a scooter.

Well now I plan to get a wheelchair for reasons I mentioned in a blog before this one.  I am just surprised that in 9 short months I went from feeling ok about what I could do to sheer panic.   My friend told me it was not as quick as I feel.  On the one hand I know she is right but on the other the transition from ok to now ok still felt abrupt and quick.