Newbie Advice

Someone asked me what I would tell someone newly diagnosed with Fibromyalgia. Here is what I came up with:

'You know how you are feeling right now? It gets better. At first being sick with Fibromyalgia is creepy and scarey. At first, before I knew what I had, I felt out of control. But it got better. I got better at managing the pain and the fibro fog.

I got better at hiding it when I felt really bad and had to go to work. I still hide the pain alot. I figured out other ways to get things done. You will too. I know you can do this.'

I hope and pray you take this to heart too!

The theory that Fibromyalgia is a retrovirus has sparked a lot of discussion among myself and my friends who have it. It would be nice to have a medical test to tell us and the world we have it. Even though it is generally accepted that Fibromyalgia is real, I still get those looks.

Better yet it would be nice to have a test for our children. I routinely try to get my children to eat and do the things that I do now so the Fibromyalgia will not be triggered in them. It seems like I have had this all my life but definitely after I had to evacuate for a hurricane.

Many of my friends tell me of trauma in their life that seemed to trigger the Fibromyalgia to a disabling extent. Many of them tell me they have had some of the symptoms and problems since childhood too.

Even if Fibromyalgia is a virus or even if it is not, we still need to do those things that work for us. Journaling what we eat or what stresses us helps us find the things that make it worse. Learning to relax and teaching our children and friends what we learn helps.

I firmly believe that I got Fibromyalgia for a reason. It is a reason I do not know or understand, but I believe everything happens for a reason.

Remember What Helps

One of the problems with Fibromyalgia is remembering to do the things that help. When you are in a flare it is harder to remember anything. The fibrofog is a killer. When you are feeling good you are busy trying to catch up.

The joy of Fibromyalgia is that I forgot what I have done before. So if I have spoke about this before sorry!

One of my theories with no basis other than my own experience is that I have to find new ways of doing things in everyday life. One of those things is my grabber. My shoulders hurt to much to be able to reach things that have fallen behind stuff or things that are too high. The grabber is a big help. At least on days when my hands don't hurt.

So what is your favorite piece of equipment?

Smoothies Update

I have not posted about these in awhile. They initially seemed to help with my Fibromyalgia. I made and drank them for a long time. I stopped because I got tired of so much banana. I did hear of a smoothie made with ripe avacado as the base.

Some alternative remedies seem to help the Fibromyalgia for awhile, then not so much. I think of the smoothies more as a natural medicine. I then forget about them. Do you think that is the fibrofog?

It might be time to start making smoothies again!

Fibromyalgia and Three Days of Work

I went to the capitol yesterday for work. I got up early for a workshop I really wanted to attend today for work. My Fibromyalgia is screaming at me to stop. The second day of the workshop is tomorrow. Although I have a working knowledge of the information I still want to hear it.

I'm surviving on coffee and energy drinks right now. I need to go tend to an adult child that won't listen but then I will sleep. Or at least till I have to pick up the youngest son from work around 11pm. Sleep is better for my Fibromalgia than the energy drinks but I do what I have to do.

I do have another energy drink hidden in the car for tomorrow. :D That's how I keep moving even when I hurt. But I may crash Thursday. Then again I may not. errrrr

I know how to keep going when I have to. I wish I could predict which things would make me hurt and when. Stupid Fibromyalgia.

Blogging Again

Yes, I know I'll never have any readers if I don't post...