Sunday, June 5, 2011

Smoothies Update

I have not posted about these in awhile. They initially seemed to help with my Fibromyalgia. I made and drank them for a long time. I stopped because I got tired of so much banana. I did hear of a smoothie made with ripe avacado as the base.

Some alternative remedies seem to help the Fibromyalgia for awhile, then not so much. I think of the smoothies more as a natural medicine. I then forget about them. Do you think that is the fibrofog?

It might be time to start making smoothies again!

Friday, June 3, 2011

Fibromyalgia and Three Days of Work

I went to the capitol yesterday for work. I got up early for a workshop I really wanted to attend today for work. My Fibromyalgia is screaming at me to stop. The second day of the workshop is tomorrow. Although I have a working knowledge of the information I still want to hear it.

I'm surviving on coffee and energy drinks right now. I need to go tend to an adult child that won't listen but then I will sleep. Or at least till I have to pick up the youngest son from work around 11pm. Sleep is better for my Fibromalgia than the energy drinks but I do what I have to do.

I do have another energy drink hidden in the car for tomorrow. :D That's how I keep moving even when I hurt. But I may crash Thursday. Then again I may not. errrrr

I know how to keep going when I have to. I wish I could predict which things would make me hurt and when. Stupid Fibromyalgia.

Wednesday, June 1, 2011

Blogging Again

Yes, I know I'll never have any readers if I don't post...

Sunday, May 1, 2011

I just read an article about the bodies inflamatory response and the brain's role in it. More specifically the vagus nerve at the base of the brain plays a role in the inflamatory response. So if my pain from the Fibromayalgia is cause, at least in part, by inflamation this might help.

If a device can be used to disrupt the vagus nerve for people with epilepsy, would it be too far to wish for a similar device for someone with Fibromyalgia? Anyway the article does not mention Fibromyalgia but it was a good read anyway. You can access it here.

Saturday, April 9, 2011

Some days it is so hard to be a mother and be in pain from the Fibromyalgia all the time. I'm amazed by the young mothers who are doing it. My youngest is a 16 year old boy. I'm almost done but...

Some days I have to go home and take a nap just so I can take him to his part time job. He is saving half of his check every pay day to get a car so I don't have to do this.

Many weeks I do not get to see my grandchildren. Either I am making up time because I had to take off work during the week or I am resting. If I do not get enough rest the Fibromyalgia knocks me on my butt.

I admire the young mothers who have Fibromyalgia and keep on keeping on.

Saturday, March 26, 2011

Fibromyalgia and Foot Pain

One of those little complications to having Fibromyalgia that myself and friends talk about is foot pain. Our discussion centers around how difficult it is to even walk with the pain in my feet and how much it tingles. It is so difficult that some of us use wheelchairs for mobility.

Surprisingly this foot pain or neuropathy most of us do not even have diabetes. Friends with diabetes know exactly what I am talking about. The first thing they ask is if I have diabetes. The verdict has always been no, even after having various tests at various times.

Neuropathy with Fibromyalgia and not having diabetes is surprisingly common among the women I know. Myself and others has gotten some relief with a variety of remedies. Arch supports in my shoes were very helpful when the pain was at its worse.

I also used warm foot baths before bedtime too. The relief I felt when I finally started asking other women if they had this type of pain was also extremely helpful. Most of them were just gritting their teeth and doing what they could.

The pain is many times present first thing in the morning. It even is at the point that I do not sleep with covers or socks on my feet at night. It feels like I have been on my feet for a 12 hour shift. In reality I just got out of bed.

Sometimes I use the electric cars at stores such as Walmart. Part of the reason is the pain in my feet. It was difficult to learn to use the cart at first. I was so grateful to be able to get groceries and shop with my children.

People do tend to judge you if you use the carts though, particularly if you do not look very old. Having children has been a challenge. I have difficulty doing the things I want and need to do with them. It takes a lot of planning and thought about how to do things now.

Another way I and some women with Fibromyalgia deal with the pain is medication. You just get so tired of medicine. Luckily the same medication, Neurontin that works for people with neuropathy from diabetes seems to work for me and some of my friends.

The flip side to that is that like many medications not all people can take Neurontin. The Neurontin worked best for me when I took it every day. It seemed to build up a cumulative effect over the days.

Myself and friends who have Fibromyalgia have this type of pain in other places than our feet. The pain can be in my arms, hands, fingers, and even face. Unfortunately when there is this type of pain in your feet the more you move around the more it hurts. When you do not move around much you do not get the gentle exercise that helps the Fibromyalgia.

Thursday, March 10, 2011

Fibromyalgia: Beliefs

There are many different attitudes and thoughts concerning people with Fibromyalgia and even the disorder itself. At this point many people do not consider it an autoimmune disease. There are also those who do not believe Fibro exists.

Then there are the people who do believe it exists, but have no idea what to do about it or how to explain it. Some medical professionals and lay people consider Fibromyalgia to be a psychiatric issue.

There are many doctors who refuse to take patients who claim to have the disease. The question which can not be answered is why other medical doctors would actively treat people who claim they have it.

The good news is that not only is there a group of doctors who treat people with Fibro, but they have hundreds of patients. Their patients have similar symptoms in vastly different personal situations.

Logically it would be extremely difficult for that many people to study a textbook and successfully lie about it. Lie many times to many people. Most people who find a doctor who treats Fibromyalgia have told there story to many medical professionals before they got there.